nord rare diseases

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NORD Guide to Rare Disorders

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Yahoo answers: How can I start a medical research and support group?

  • Health Care

    Dear Danielle, There are a few local "self-help group clearinghouses" in Canada that can hopefully help you in starting a support group (and possibly a non-profit foundation). Here's a listing:...

Latest news about nord rare diseases

  • Can lab grown tissues help test drugs for rare diseases?

    Marshall L. Summar, MD: I am Marshall Summar, Chief of Genetics and Metabolism at Children's National Medical Center in Washington, DC, for Medscape Rare Diseases. I am at the National Organization for Rare Diseases (NORD) Orphan Products 
    Source: http://geneticliteracyproject.org/2015/01/21/can-lab-grown-tissues-help-test-drugs-for-rare-diseases/

  • The more we know about rare diseases, the more likely we are to find safe and ...

    Recently The National Organization for Rare Diseases (NORD), has teamed up with the patient advocacy group that represents people with the rare disease known as Von Hippel Lindau disease. This is a condition with many debilitating symptoms that also 
    Source: http://blogs.fda.gov/fdavoice/index.php/2014/10/the-more-we-know-about-rare-diseases-the-more-likely-we-are-to-find-safe-and-effective-treatments/

  • Amid measles outbreak, a look at vaccine-related legislation in several states

    Another measure, introduced by Republicans, would create a vaccine safety office in Maine's Center for Disease Control and Prevention that would offer parents guidance on the risks of vaccines. Committee hearings have not yet been held on the bills.
    Source: http://www.nwherald.com/2015/02/06/amid-measles-outbreak-a-look-at-vaccine-related-legislation-in-several-states/an0u0vd/

  • A look at some vaccine-related legislation in several states

    Another measure, introduced by Republicans, would create a vaccine safety office in Maine's Center for Disease Control and Prevention that would offer parents guidance on the risks of vaccines. . David Eggert in Lansing, Michigan; David Klepper in
    Source: http://www.wfsb.com/story/28040669/a-look-at-some-vaccine-related-legislation-in-several-states

  • Measles outbreak expected to reach Butte County

    Chico >> Butte County health officials say it's likely a matter of when — not if — this area will see its first measles case, considering vaccination rates and the mobility of modern society. With more than 100 cases of measles now confirmed in 14
    Source: http://www.orovillemr.com/general-news/20150204/measles-outbreak-expected-to-reach-butte-county

Images nord rare diseases

Rare Disease Blogs
Rare Disease Blogs

SADS - NORD Rare Disease Day 2012
SADS - NORD Rare Disease Day 2012

Images from the Rare Diseases/Orphan Products Summit — National ...
Images from the Rare Diseases/Orphan Products Summit — National ...

... and events nord announces funding for seven new research grants nord
... and events nord announces funding for seven new research grants nord

Other sites on the topic of nord rare diseases

  1. National Organization for Rare Disorders - Official Site
    WHAT IS NORD? The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare ...
    https://www.rarediseases.org/
  2. Rare Disease Database - Welcome to NORD — National ...
    NORD's Rare Disease Database provides brief introductions for patients and their families to more than 1,200 rare diseases. This is not a comprehensive database since ...
    http://www.rarediseases.org/rare-disease-information/rare-diseases
  3. National Organization for Rare Disorders (NORD) | Rare ...
    We thank the editors of Kiplinger’s Personal Finance for suggesting donations to NORD to help people living with rare diseases as a way to have a positive impact!
    http://blog.rarediseases.org/
  4. NORD’s Rare Diseases and Orphan Products Breakthrough ...
    NORD’s Rare Diseases and Orphan Products Breakthrough Summit is the largest and most meaningful multistakeholder event of its kind – Featuring over 20 speakers ...
    http://www.cbinet.com/nord
  5. Rare Disease Day USA | Alone we are Rare. Together we are ...
    Join the National Conversation Tuesday, Feb. 17, 2015 1-2 p.m. ET Join NORD and ABC News to raise awareness and answer questions about rare diseases!
    http://rarediseaseday.us/